Action Blog
Viewing entries tagged with 'rp'
Moorfields, retinitis pigmentosa, medical research and chairs
I am sitting in the waiting room at Moorfields Eye Hospital awaiting my annual inspection, and waiting is the operative word, as the medical retina clinic where said inspection takes place is awfully busy, but I don't mind as this is also the place that in 100 years time will probably be a ghost town, so I'm happy to give them the custom for now!
Finding a great optician has been a life changing experience for this visually challenged girl
It is just one of those things that most people don’t get. If I am blind, why the heck do I wear glasses? Well, since only 3% of those registered blind in the UK have no vision at all, the rest of us do have some useful vision. As the Retinitis Pigmentosa only affects the back of my eyes, at the front, the lens has always required correction and, using glasses or contact lenses does improve the useful vision that I’ve got.
On meeting milestones in progressive sight loss
Over the past few weeks or so, I realise that I have reached some new sight loss milestones, and I use the word 'realise' on purpose, because when I have a new symptom or some aspect of my vision degenerates to the point where I can no longer do something I used to be able to do, it is like a slow dawning rather than just waking up one day and saying "Alrighty. That’s a goner", and then ticking some sort of box on your list of milestones.
Treat your useful vision with respect please
When I last saw my consultant, I was having really bad double vision and he referred me to another consultant who specialises in, well, double vision of course. I do love Moorfields.
How Retinitis Pigmentosa rocks the world – paying homage during World Retina Week
When I was first diagnosed with RP, there was little known about it and I was basically told that I had the disease and that I would go blind someday. And that was that. No treatment. No cure. No idea what the heck caused it. No idea when I would go blind. No support or counselling. Well, to add a dash of irony, I was completely in the dark.
Gratitude comes in all shapes and sizes
At this exact point in time, I am glad that there is no cure for retinitis pigmentosa. I know that sounds pretty peculiar, but this dreaded disease has changed my life for the better.
Lessons in self-diagnosis and poor judgement
Today I got some good news and some bad news. The good news is that I don’t have cataracts and the bad news is that I don’t have cataracts. For those of you using screen readers, no, it is not a typo.
Visual impairment and its day to day shenanigans
In sitting down to write my very first post for the Action for Blind People blog, I started to think about how to introduce myself and realised that this is not such an easy thing to do. So, I stood in front of the mirror in the hope of getting some inspiration, got far too close in order to actually see myself and nearly broke my nose...
Tag cloud
accessibility, apple, assistive technology, beauty, benefits, braille, burnley, christmas, confidence, coping, disability, disclosing disability, discrimination, dla, dwp, education, employment, esa, family, fashion, grieving, guide dogs, happiness, holidays, human rights, inclusive design, inclusivity, independence, independent living, iphone, life, lifestyle, living with sight loss, pension, people, personal independence payment, pip, registration, respect, rp, sailing, shopping, sight loss, social inclusion, stereotypes, technology, travel, web accessibility, welfare rights, work,
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